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Our mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure. The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a cure.

Click below to be a BDFA

JUNE 13th - 6.55pm…
Free superhero cape & masK

By signing up above, your will be part of the BDFA Superhero running team! Now is the time to release your inner superhero and raise some vital funds for BDFA. The BDFA team are on hand to to help you with any fundraising advice or support you may need. If you do please contact the team via or on 0333 4441189. Runners must be over 8yrs old to enter. Runners between 8yrs - 16yrs are free, but must be accompanied by an adult. All runners also receive a superhero mask, cape and medal, Full details on the Event Info page. Terms & conditions apply available here

Set up your fundraising page by clicking below or via your own link…